Privacy Notice

This privacy notice provides you with information about what happens to personal data that you either give to us or we collect about you. It applies to all products and services and instances where we collect your personal data.

This notice:

  • lets you know what we do with your personal data and what we do to keep it secure. It also explains where and how we collect your personal data as well as outlining your rights over any personal data we hold about you; and

  • applies to all products and services and instances where we collect your personal data (for example, if you use our website, our services, our mobile apps or if you are interacting with us on social media.

Contact details:

This privacy notice has been adopted by PatientSource Ltd (company number 08143706).

The contact address for all of the companies referred to is Blenheim House, Cambridge Innovation Park, Denny End Road, Waterbeach, Cambridge, CB25 9PB.

Telephone: 01223 851 273

Our Data Protection Officer is Dr Philip Ashworth.

Scope of this privacy notice

This notice sets out the basis on which any personal data we collect from you, or that you provide to us, will be processed by us. ‘Processing’ for the purposes of this notice covers a very broad range of activities, including using, transferring, storing and deleting.

Please read the following terms carefully to understand our views and practices regarding your personal data and how we will treat it.

For the avoidance of doubt, by registering with, or using, our websites, apps, services or otherwise interacting with us, you consent to the collection, use and transfer of the relevant data and your information under the terms of this privacy notice (save that, as noted above, certain of our sites (such as Patient and Patient Access) and products will have their own specific privacy notices or policies which will apply in place of this notice).

What information about you might we process and where do we get it from?

We may collect and process the following information about you:

  1. Information you give us

    • You may give us information about you by filling in forms on our websites, using our services or by corresponding with us (for example, by e-mail or via social media). The information you give us may include your name, address, email address, phone numbers and feedback you might provide.

    • If you contact us, we may keep a record of that correspondence.

  2. Information provided when submitting or updating a request for support or contacting our support teams.

  3. Information provided when creating a user account within our PatientSource system (including, usernames and password information).

  4. Information collected as a result of any monitoring which may take place. We may monitor (which may include recording) certain interactions between us in order to comply with any legal obligations, to detect fraud or criminal activity as well as for training purposes.

  5. Information about any device which you use to visit our websites or access our services such as the type of device used, operating system, browser type, IP address and screen resolution.

  6. Details of the resources you access through our websites or services.

What uses do we make of the information?

The information we collect may be used in the following ways:

  • to manage your account and for our internal admin purposes;

  • to provide you with information, products or services that you request from us;

  • to contact you about our services;

  • to conduct market research and statistical analysis, either ourselves or through an agency;

  • to help us to understand you better as a user of our websites and/or a recipient of our services so that we can improve our services;

  • to perform any contracts entered into between you and us;

  • for security and safety purposes;

  • to assist you with your use of our websites and services and to respond to any comments or queries which you may have raised;

  • to allow you to participate in interactive features of our websites or services, when you choose to do so;

  • to notify you about changes to, or any issues with, our services;

  • to ensure that we present the correct version of our websites and services for your device; and

  • to monitor visitor interest and behaviour and understand general usage of our websites and services, to help us improve our sites and services.

We will only use your personal data for the purposes for which we collected it, unless we reasonably consider that we need to use it for another reason and that reason is compatible with the original purpose. If we need to use your personal data for an unrelated purpose, we will notify you and we will explain the legal basis which allows us to do so.

What are the grounds used to justify our processing of your personal data?

Like most businesses we may rely on a range of legal bases in order to ensure that our use your personal data is lawful, including:

  1. Where it is needed to provide you with our products or services, such as:

    • updating your records, contacting you about the relevant product or service (where appropriate);

    • sharing your personal data with services providers in order to deliver the relevant product or service;

    • activities relevant to managing the relevant product or service including any enquiries you may make regarding the product or service, your application to receive the relevant product or service, and the administration and management of accounts;

  2. Where it is in our legitimate interests to do so (provided this is not overridden by considerations regarding your rights and interests), such as:

    • managing your products and services relating to that, updating your records, contacting you about the relevant product or service (where appropriate);

    • performing and/or testing the performance of, our products, services and internal processes;

    • following guidance and recommended best practice of government and regulatory bodies;

    • managing and auditing our business operations including accounting and finance functions;

    • monitoring and to keeping records of our communications with you;

    • administering our governance requirements, such as internal reporting and compliance obligations;

    • undertaking market research and analysis and developing statistics;

    • or direct marketing communication purposes to help us to offer you relevant products and services; and/or

    • complying with any relevant legal and/or regulatory obligations;

    • to comply with our legal obligations; and/or

    • with your (explicit) consent.

Cookies

We use cookies to distinguish you from other users of our websites and services. This helps us to provide you with a good experience when you visit our websites or use our services and also allows us to improve our websites and services. For detailed information on the cookies we use and the purposes for which we use them, please see our Cookie Policy.

GPDR

The General Data Protection Regulation, or GDPR for short, is one of the biggest changes to data privacy law in recent years. It is designed to put you in control of how your information is collected and used by organisations.

Disclosure of the information

We may disclose your information to other organisations in certain situations. For example, we may disclose information:

  • within the PatientSource for our internal business purposes and to the extent necessary for us deliver any relevant services to you.

  • to third party partners and suppliers where we need them to process your personal data on our behalf so that we can deliver our services to you. This includes the transfer of contact data held in our CRM to third party marketing automation system providers who provide us with marketing services. We of course remain responsible for those third parties and it is our responsibility to ensure that they use any personal data that we make available to them correctly and in accordance with our instructions and the law.

in order to:

  • enforce or apply our terms of use in respect of our websites, services and/or other agreements or to investigate potential breaches; or

  • protect our rights, property and safety (and that of our customers, or others).

    • if we are under a duty to disclose or share your personal data in order to comply with any legal or regulatory obligation or request.

    • in connection with a potential sale or transfer of part or all of our business, we may share information with prospective purchasers.

    • if we reorganise our business then we may need to transfer information about you to another member of PatientSource so that we could continue to provide services to you.

Information storage and information retention

The information that we collect from you will be processed (which may include, where relevant, storing it) in accordance with our obligations under the relevant laws which set out our obligations as someone that has personal data within our possession and control.

We will retain a record of your personal data in accordance with relevant law and based on the following criteria:

  • where we have a reasonable business need to do so, for example, in order to manage our relationship with you;

  • where we are providing products and/or services to you and then for as long as someone could bring a claim against us in respect of those products or services; and/or

  • in line with any legal and regulatory requirements or guidance in respect of retention periods.

We use strict procedures and security features designed to prevent any unauthorised or unlawful access to the personal data which we control. All information you provide to us is stored securely at our offices and (where relevant) at the offices of third party agencies, service providers, representatives and agents as described above. We also hold your personal data in secure data centres in the UK.

Where we have given you (or where you have chosen) a password that enables you to access certain parts of our website(s) or services, you are responsible for keeping this password confidential. We ask you not to share your password information with anyone.

Transfers of personal data overseas

We are primarily a UK based business but from time to time personal data may need to be transferred outside of the European Economic Area – where this is the case then we will ensure that we have the necessary safeguards in place.

Third party sites and links

Our websites may, from time to time, contain links to and from the websites of our partner networks, (from certain of our sites) advertisers or other third parties (for example, we include links below to the site of the Information Commissioner’s Office).

If you follow a link to any of these websites, please note that these websites and any services that may be accessible through them have their own privacy notices and policies and that we do not accept any responsibility or liability for these notices or policies (and how they may be applied) or for any personal data that may be collected through those third party websites or services, such as contact and location data. Please check the relevant third party policies before you provide any personal data to those websites or use their services.

Marketing - Letting you know about our products and services

From time to time we would like to tell you about the products and services available from members of PatientSource.

If you have agreed to receive marketing materials from us then we may contact you through the post, by email, text message, online, using social media, or by any other electronic means.

In addition, as noted above we have a legitimate interest in using personal data we hold in respect of individuals to let them know about our products and services. This ground will not apply if you are interacting with us in a personal capacity.

You have the right at any time to ask us not to process your personal data for marketing purposes. You can exercise your right to limit or prevent such processing by contacting us (see below) or by selecting an option to unsubscribe in any relevant electronic communication.

As noted above, in connection with our marketing activities we may share contact data held in our CRM with third party marketing automation system providers who provide us with marketing services (but it will only be used by them on our behalf).

Your rights

You have a number of important legal rights regarding the manner in which personal data relating to you is used. You can find more information about your rights on the Information Commissioner’s Office website – please see https://ico.org.uk/for-the-public/.

We have outlined below the key rights which we believe may be relevant to your use of our websites and services.

If you would like to exercise any of these rights then please contact us using the contact information provided below. Please note that You may be asked to provide us with reasonable proof of your identity so that we can be sure that we are discussing your information with you (or if someone is making a request on your behalf, that they have the authority to do so).

Please note that if you have a query regarding any medical record or similar which we hold on behalf of a GP practice or hospital or similar then we will most likely need to refer your query to the relevant third party as they are responsible for that information (i.e. they are the ‘data controller’) and will need to determine how to respond to your query.

Right of access to information

You have the right to access certain information held about you so that you can be aware of, and verify the lawfulness of, the processing we undertake.

You can exercise your right of access by making what is generally referred to as a 'subject access request'.

We will review each request which we receive and if we agree that we are obliged to provide personal data to you then we will (subject to certain limited exceptions provided under the relevant law) amongst other things: (i) describe it to you; (ii) tell you why we are holding it; (iii) tell you who it could be disclosed to; and (iv) let you have a copy of it (this may include providing an electronic copy).

Right to have information corrected

If you identify that any personal data that we hold about you is wrong, inaccurate or out of date then you may ask us to correct or update it. Please contact us via the details provided below and we will review each request and respond accordingly.

Right to stop or limit our processing of your personal data

This is also known as the ‘right to be forgotten’. You have the right to require us to stop or to limit any processing we are undertaking in respect of your personal data if we no longer have a valid reason to do so or if we have held it for too long.

This is not an absolute right but every request we receive will be considered carefully and we will respond accordingly (providing grounds for any decision we make).

Right to withdraw consent

You are free to withdraw any consent which you have given to us in relation to our use of your personal data at any time.

As noted above, you have the right to tell us to stop sending you any direct marketing materials at any time.

Right to complain

If you are unhappy about the way in which we have processed your personal data then you have a right to raise the issue or to lodge a complaint with the Information Commissioner’s Office – as noted above please see https://ico.org.uk/for-the-public/ for further details.

NHS login

Please note that if you access our service using your NHS login details, the identity verification services are managed by NHS Digital. NHS Digital is the controller for any personal information you provided to NHS Digital to get an NHS login account and verify your identity, and uses that personal information solely for that single purpose. For this personal information, our role is a “processor” only and we must act under the instructions provided by NHS Digital (as the “controller”) when verifying your identity. To see NHS Digital’s Privacy Notice and Terms and Conditions, please click here. This restriction does not apply to the personal information you provide to us separately.

NHS Care Identity Service

Please note that if you access our service using your NHS Care Identity credentials, the identity access and management services are managed by NHS Digital. NHS Digital is the controller for any personal information you provided to NHS Digital to get a national digital identity and authenticate your claim to that identity, and uses that personal information solely for that single purpose. For any personal information, our role is a “processor” only and we must act under the instructions provided by NHS Digital (as the “controller”) when verifying your identity. To see NHS Digital’s Privacy Notice and Terms and Conditions, please click here. This restriction does not apply to the personal information you provide to us separately which is managed in accordance with our Privacy Policy.

PDS FHIR API

If you are receiving care from a health or care organisation, that organisation may share your NHS number with other organisations providing your care. This is so that the health and care organisations are using the same number to identify you whilst providing your care. By using the same number the health and care organisations can work together more closely to improve your care and support.

Your NHS number is accessed through an NHS Digital service called the Personal Demographic Service (PDS). A health or care organisation sends basic information such as your name, address and date of birth to the PDS in order to find your NHS number. Once retrieved from the PDS, the NHS number is stored in our case management system. These data are retained in line with our record retention policies and in accordance with the Data Protection Act 1998, Government record retention regulations and best practice. Further information is available on our website https://patientsource.co.uk.

We will share information only to provide health and care professionals directly involved in your care access to the most up-to-date information about you. Access to information is strictly controlled, based on the role of the professional, and where the user has a direct care relationship with you.

The use of joined up information across health and social care brings many benefits. One specific example where this will be the case is the discharge of patients into social care. Delays in discharge (commonly known as bed blocking) can occur because details of social care involvement are not readily available to the staff on the hospital ward. The hospital does not know who to contact to discuss the ongoing care of a patient. The linking of social care and health information via the NHS number will help hospital staff quickly identify if social care support is already in place and who the most appropriate contact is. Ongoing care can be planned earlier in the process, because hospital staff will know who to talk to.

You have the right to object to the processing of your NHS number in this way. This will not stop you from receiving care, but will result in the benefits outlined above not being realised. To help you decide, we will discuss with you how this may affect our ability to provide you with care, and any other options that you have.

If you wish to opt-out from the use of your NHS number in this way, you can contact us by phoning 01223 851 273 or by emailing privacy@patientsource.co.uk.

Changes to our privacy notice

We will keep this privacy notice under regular review and we may update it from time to time (for example, to reflect changes we might make to our services or to reflect changes in the law or best practice).

Any changes we may make to our privacy notice in the future will be posted on this page. We encourage you to visit this page periodically so that you are aware of any changes which have been made.

Contact

If you have any comments or concerns regarding our privacy notice, or the manner in which we handle your personal data or if you would like to exercise any of the rights outlined above then please do feel free to contact us by one of the following means and we will consider your comments and respond accordingly:

  • By post: Data Protection Officer, Blenheim House, Cambridge Innovation Park, Denny End Road, Waterbeach, Cambridge, CB25 9PB

  • By email: privacy@patientsource.co.uk

Changes to this Policy

We reserve the right to periodically make changes to this Notice; material changes will be effective immediately upon the display of the revised Notice. The last revision will be reflected in the “Last Updated” section. Your continued use of the Site constitutes your acknowledgment and consent of such changes to the Notice and your agreement to be bound by the terms of such changes.

Last updated: April 03, 2024.